Tuesday, May 6, 2014

Worldwide Lyme Protest 2014


Worldwide Lyme Disease Awareness Protest
Over twenty countries and several states all to protest on
May 16-18, 2014





Several countries are putting together a worldwide protest for Lyme Disease Awareness. If you would like to find out more about it please click here.
About the WWLDAP
Where: Global
When: May 16-18, 2014
What: Lyme Awareness Events around the world



Mission Statement: 

Worldwide Patients are raising awareness and protesting to highlight the need for:1. Recognition that Lyme disease/borreliosis, and other tick-borne infections, such as Babesia, Bartonella, Rickettsia, Ehrlichia, are serious, and sometimes fatal illnesses.

2. Awareness of the fact that the transmission of tick-borne pathogens, such as borrelia, babesia, rickettsia, via blood transfusion is of global concern.

3. Agreement that Lyme disease/borreliosis should be listed as a notifiable infection. Notifiable status will aid in ensuring that the incidence and spread of this disease are monitored, a necessary precursor to determining the human suffering and socioeconomic impact of the disease.

4. Education of the healthcare sector regarding the accurate diagnosis of Lyme, which in some cases may be limited to clinical presentation due to limitations of serological testing.

*Education should ensure all doctors are familiar with the CDC caution pertaining to criteria for blood tests for Lyme: “This surveillance case definition was developed for national reporting of Lyme disease; it is NOT appropriate for clinical diagnosis...Surveillance case definitions are created for the purpose of standardization, not patient care.”

* Education that Lyme should be included as a differential diagnosis when considering other illnesses that are also reliant on subjective clinical presentation, or have no known cause. This includes, but is not limited to: Motor Neurone Disease (MND) also known as Lou Gehrig’s disease or Amyotrophic lateral sclerosis (ALS) ; Multiple Sclerosis ; Alzheimer’s; Parkinson’s disease; Sarcoidosis.

5. Education of the healthcare sector regarding affordable and effective treatment of both acute and chronic Lyme and other tick-borne infections. This includes the need to update the outdated treatment guidelines of the Infectious Diseases Society of America (IDSA) and to take into account the treatment methods of other Societies such as: The International Lyme and Associated Diseases Society (ILADS) and the German Borreliosis Society (Deutsche Borreliose-Gesellschaft : DBG)

6. Funding for research into tick-borne diseases. Including: Funding for medical research into accurate Lyme testing and treatment ; Funding for research into vectors and reservoir hosts to determine what diseases they may carry and transmit. 

Tuesday, April 29, 2014

London in the Worldwide Lyme Protest 2014


Worldwide Lyme Protest London 2014

When: Saturday, May 17 1:00pm - 4:00pm in UTC+01
Where: Waterloo Road
Lambeth, London, United Kingdom
Dept of Health offices, 
Wellington House. 
135-155 Waterloo Road. 
London 

Please add yourselves onto the Worldwide Lyme Patient Map and Google Album!



Tuesday, March 25, 2014

Poland in the Worldwide Lyme Protest 2014



"Lyme Poland" Presents:
Worldwide Lyme Protest in Poland 2014

When: 18th May, 2014
Where:  Centre of Warsaw (capital city)

 Polish Lyme Patients Association (SChnB) - Lyme Poland 

Please join our facebook page http://facebook.com/borelioza.org  And stop by to "like" http://fb.com/WorldwideLymeProtestPoland

Please Join This Page for updates!

Please add yourselves onto the Worldwide Lyme Patient Map and Google Album!



Saturday, March 8, 2014

Online Campaigns for the Wordwide Lyme Awareness Protest 2014

There will be many online campaign this year in the  Worldwide Lyme Awareness Protest 2014. Below are several Lyme Awareness Campaigns that people can participate in. 





Lyme Lives Here Campaign

* You can use this poster in a couple different ways. Print out this sign and place in your yard.
* Put this sign in your profile picture in May.
* You can make your own "Lyme Lives Here" sign.
* Take pictures and send it in to us for us to post and so we can use the pictures for the blog and media purposes.






"We are the Millions" Google Album Campaign

* Write to your local papers and newstaton to tell them about this  album and how it shows that there are so many Lyme patients suffering around the world. Include with this our Mission Statement.
* Share everywhere on social media@


Add your picture to the "We are the Millions" Google Album Here.



Chronic Lyme Patients Worldwide Map


This map was made to show how many Chronic Lyme Patients there are across the world. It is not a map to show where people got infected. The ponit of this map is to show where care, financial aid, assistance and medical care is needed for patients. 

*Add yourself to the map.
* Share the map on all social media.
* Write to your local newspapers and newstations and try to get this map on the news. 



Events You Can Do From Home

Samantha's Annual Lyme Life Awareness "Green Light" Campaign

Where: everywhere!
When: All through May. This will be the second year in a row for the green light campaign! It's simple and everyone can do this with us. Just buy a green bulb at your local hardware store and change your porch light!





Ribbons Across the World

Where: Everywhere!
When: All through May


S-L-A-M.org started a campaign several years ago in the US. We are now going to expand WORLDWIDE!  Each May, people hang up lime green ribbons wherever they can. You can tie them on your porch, your mail box, get permission from your town to tie them on phone polls... anywhere that will bring attention to Lyme Disease. So this May, get ready to do it again.


Worldwide Protest Map, Find a Protest Near You!


Lyme Lives Here Campaign


Talking to the Washington State, US Coordinators for the Worldwide Lyme Protest, they came up with some good ideas. Well it's an idea that they have been doing for several years. Hearing this idea, I thought it would be a great campaign to incooperate into the Worldwide Lyme Disease Awareness Campaign.

Every year Lorraine and Anna Hart go stand outside with a sign that says, "Lyme Lives Here." When people inquire about what they are doing they hand them Lyme brochures. 

Last year for the 2013 Protest, Karen Smith, Australian WWLP coorindator, made "Lyme Lives Here" posters for each country to share on Facebook and put in profile pictures. So why not combine these two ideas and make a huge campaign, "Lyme Lives Here." We can put these posters on social media. We can put them in our yards. We can stand on the street with signs. 

As part of the Worldwide Lyme Protest 2014 we would like to encourage everyone to do this. It is a great way for states that don't have protests, rallies or walks to go to, or for the Lyme patient that feels to sick or weak to attend these physical events.



* You can stand outside with a sign for example, on an intersection or at a park, of course don't block obstruct traffic or thru traffic. 

 *Hold up a sign at the mall, school, hospital grounds, or any public place. Check ahead to see if you need permission.

* Put a sign in your front yard. Next to it you could also put a place for people to take brochures. 

Hester Strumpfer from South Africa